OIFE - Osteogenesis Imperfecta Federation Europe

The Osteogenesis Imperfecta Federation Europe OIFE is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with Osteogenesis Imperfecta OI. The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.

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OIFE.ORG HISTORY

This web page oife.org was created on January 09, 2001. It is currently one thousand two hundred and twenty-five weeks, twenty-six days, nine hours, and twenty-five minutes young.
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2001

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23
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5
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27
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LINKS TO WEB SITE

AHUCE Asociación de Huesos de Cristal de España Osteogénesis imperfecta

Naturaleza frágil, espíritu inquebrantable. Asociación Nacional Huesos de Cristal. BOE de 6 de septiembre de 2012. Seat, staff and collaborators. Servicio de Segunda Opinión de Fisioterapia. To receive care at any.

BBC Belgian Bone Club

The Belgian Bone Club has endorsed the workshop organized by the ERA-EDTA working group.

NFOIs hjemmeside Sammen er vi sterke

Kjenner du noen med OI som ikke er medlem i NFOI? Invitasjon til voksensamling på Soria. Voksensamling Samlingen er en voksensamling som er åpen for alle ordinære medlemmer over 18 år, og vil ha flere parallelle tema som passer både for personer med OI og pårørende. Samlingen starter med middag fredag kveld kl 20. Lørdag og søndag blir det parallelle temasamlinger, og vi avrunder til slutt med lunsj søndag kl 13.

Osteogenesis imperfecta Informationen für Betroffene und Angehörige

Osteogenesis imperfecta, kurz OI, ist eine seltene Erbkrankheit, die umgangssprachlich auch als Glasknochen-krankheit bezeichnet wird. Bei diesem Krankheitsbild, das von den Betroffenen eher als Behinderung denn als Krankheit empfunden wird, kommt es zu einer abnormal hohen Knochenbrüchigkeit aufgrund einer veränderten Zusammensetzung der Knochen. Die verschiedenen Typen der OI. Bis zu 20 Knochenbrüche im Jahr.

Página en español sobre Osteogénesis Imperfecta

Como ocurre con tantas otras enfermedades, un tratamiento no adecuado puede ocasionar graves perjuicios a los enfermos. Y para terminar, mi agradecimiento. Si desea ponerse en contacto conmigo, puede .

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CONTACTS

Osteogenesis Imperfecta Federation Europe

R.G. van Welzenis

Luytelaer 1

EINDHOVEN, 5632BE

NL

YourHosting BV

Valentijn Borstlap

Schrevenweg 5

Zwolle, Overijssel, 8024 HB

NL

YourHosting BV

Valentijn Borstlap

Schrevenweg 5

Zwolle, Overijssel, 8024 HB

NL

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PAGE TITLE

OIFE - Osteogenesis Imperfecta Federation Europe

DESCRIPTION

The Osteogenesis Imperfecta Federation Europe OIFE is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with Osteogenesis Imperfecta OI. The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.

CONTENT

This web page oife.org states the following, "2-2018 of OIFE Magazine can now be downloaded as a PDF." We viewed that the website stated " It is a special extended edition about research, but also includes news from ERN-BOND and the OI-community, artist interview, travel report from India and more." It also said " On February 28th OIFE attended an ERN-BOND event at the EU Parliament. OIFE 2018 DONATE HERE." The header had OIFE as the highest ranking search term. It is followed by OI, Europe, and Osteogenesis Imperfecta which isn't as ranked as highly as OIFE.

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